Long time since a post, we found it too difficult to keep up with updating all of her appointments! So, just a quick update on how Siena is doing today.
She no longer has her feeding tube, and is able to (with some challenges) eat all of her food by bottle! Siena is now finally on Growth Hormone (GH) therapy, which has been helping out a great deal with her low muscle tone. She has some work to do with her core strength before she begins sitting on her own, but she's getting there! Her head control is miles better than it was a month ago.
We're hopefully going to start planning a local "One Small Step" walk for this year or early next year. Any ideas you have would help us get going on it!
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She no longer has her feeding tube, and is able to (with some challenges) eat all of her food by bottle! Siena is now finally on Growth Hormone (GH) therapy, which has been helping out a great deal with her low muscle tone. She has some work to do with her core strength before she begins sitting on her own, but she's getting there! Her head control is miles better than it was a month ago.
We're hopefully going to start planning a local "One Small Step" walk for this year or early next year. Any ideas you have would help us get going on it!
