The long awaited appointment with Siena's endocrinologist, Dr. Diane Stafford, of Boston Children's Hospital, finally came today! We were a bit anxious for this meeting for a couple reasons. First, we want to get Siena started with Growth Hormone as soon as possible. Second, we didn't know where this doctor stood on the concept of early application of growth hormone. We hear from many families that they had trouble getting their endocrinologists to buy in to the idea of starting growth hormone. We feel it's a lack of awareness of all the great research findings that are going on right now.
Dr. Stafford specializes in Prader...
Thursday, November 29, 2012
Tuesday, November 20, 2012
First Early Intervention Visit!
Siena had her first appointment with Early Intervention today! Her Occupational Therapist (OT) is wonderful and has years of experience with children that have PWS. This first visit is mainly for Siena's primary evaluation of her motor skills, muscle tone, and social ability. She passed a multitude of tests with flying colors--something we didn't expect! She does have some things to work on, including lower tone in her upper body (specifically with head control and her arms). She took very well to her Boppy pillow during "tummy time." We'll be using this as a way to build her strength in her legs and shoulders in the upcoming...
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